CureforU

A Project Inspired by Personal Experience of Parents

Facilitating Cure For Rare or Complex Diseases

We facilitate better cures for people living with a Rare or Complex Disease by enabling health care professionals to connect, collaborate and learn from each other.

Why We Care

We are a group of people who are linked in different ways due to these Rare Diseases. We want to capitalize on this energy, passion and value driven from personal life experiences to make meaningful difference in lives of people living with rare disease

This project is inspired by the personal experience of parents (originally from Pakistan but living in Belgium) where their son born with Anorectal malformations was medically treated very well by Prof Miserez (UZ Leuven Hospital). Parents in collaboration with Prof Miserez and APSP (association of pediatric surgeons of Pakistan) launched this initiative aiming to connect health care professionals to facilitate better diagnose and treatment outcomes for people living with Anorectal malformations and other rare disease.

Medical Case Discussion

If you are interested in presenting a case, send us a Powerpoint presentation Submit Case

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Our Services

We provide digital platform to create dynamic collaborative networks of Western & Eastern Medical experts

To share, store and discuss complex or rare medical cases, to foster medical learning.
To enable online second medical opinion for rare or complex medical cases to improve the chances of successful outcome for patients.
To facilitate institute level collaborations (West - East) to improve the medical standards in Developing Countries.

Patient Privacy is critical to us

We do all possible to protect patient privacy and have implemented following
1) In built Patient Consent forms
2) Clear case posting guidelines and Ability to flag any inappropriate content
Access to this digital platform is FREE for medical professionals

Disease Areas

Initial focus is on Aneorectal Malformations and Hirschprung Diseases.

Get CureforU Mobile App

We facilitate better cures for people living with a Rare or Complex Disease by enabling health care professionals to connect, collaborate and learn from each other.

Journey So Far

Over the past few years, our platform has made significant strides in the field of rare disease diagnosis and treatment. Here are some of our achievements so far

Global Case Discussions

Facilitated engagement on 92 complex and rare medical case discussions among healthcare professionals.

Valuable Learning

19 key educational and informational resources, along with links to relevant events, have been made available to empower medical professionals.

Engaging Discussion

Centered on our platform, 2 dynamic discussion threads have been initiated, fostering robust professional exchanges among medical experts.

In Collaboration With

APSP - Asociation of Pediatric Surgeons Pakistan

Pakistan

Afghanistan Association of Pediatric Surgeons

Afghanistan

SOMA - Germany Patient and Parent Association for ARM, HD-HSCR and EC

Germany

AIMAR - Italian Association for Anorectal Malformations Patient Advocacy Non-Profit Organization

Italy

European Reference Network

ERN eUROGEN

ARM net

www.arm-net.eu

Action network Rare congenital Malformations of the German Society of Pediatric Surgery

Germany

Big THANKS to our Advisors & Collaborators

Belgium

Prof M Miserez

UZ Leuven Hospital

Past President of Belgian Association of Pediatric Surgery

Pakistan

Prof Dr M Arshad

Liaquat Hospital Karachi

President Eelect Association of Pediatric Surgeons Pakistan

Afghanistan

Dr M Tareq Rahimi

French Medical Institute Kabul

President Afghanistan Association of Pediatric Surgeons

Pakistan

Prof M Saleem

Children Hospital Lahore

Past President Association of Pediatric Surgeons Pakistan

Pakistan

Prof Dr Ghulam Nabi

Al Nasir Hospital Quetta

President Select Association of Pediatric Surgeons Pakistan

Pakistan

Prof Inayat Ur Rahman

KT Hospital Peshawar

Past President Association of Pediatric Surgeons Pakistan

Pakistan

Prof Jamshed Akhtar

National Institute of Child Health Karachi

Austria

Dr Carlos A. Reck

Medical University Vienna

Member EU ARM Network, Co-founder Helping Hands for Anorectal Malformations

Turkey

Dr Emre Divarci

Ege University Medical School Izmir

Member EU ARM Network

Turkey

Prof Ibrahim Ulman

Ege University Medical School Izmir

hairman Div. of Pediatric Urology

Germany

Prof Jochen Hubertus

Ruhr-University Bochum

Director, Department of Pediatric Surgery

Austria

Prof Holger Till

Medical University Graz

Chairman, Department of Pediatric and Adolescent Surgery

Austria

Dr Eva Amerstorfer

Surgeon Medical University Graz

Co Chair ARM-net, Pediatric Surgeon Medical University Graz

Germany

Dr Mattias Schafer

Children's Clinic Nuremberg

Department of Pediatric Surgery and Pediatric Urology

Germany

Prof Alexandre Serra

University of ULM Medical Center

Lead Consultant Department of Pediatric Surgery

Germany

Prof Oliver Muensterer

LMU Munich Germany, Member ERN eUROGEN

Chairman Pediatric Surgery

Italy

Prof Paola Midrio

Ca Foncello Regional Hospital Treviso

Chief in Pediatric Surgery, Ex Chair ARM net

Netherlands

Prof Wout Feitz

Coordinator ERN eUROGEN

Italy

Dr Alessio Pini Prato

The Children Hospital Alessandria

Member ERN eUROGEN

Netherlands

Dr Marieke Witvliet

University Medical Center Utrecht

Pediatric Surgeon Specialized in ARM and HD, Member ARM net

Germany

Dr Stefan Rohleder

University Medical Center Mainz

Consultant Pediatric Surgeony, Member ARM net

Germany

Nicole Schwarzer

Chairwoman SOMA

German Patient and Parent Association for ARM, HD-HSCR and EC

Italy

Dr Anna Morandi

Consultant Pediatric Surgery

Chair ARM net